Mersin B\u00fcy\u00fck\u015fehir Belediye Ba\u015fkan\u0131 Vahap Se\u00e7er, T\u00fcrkiye\u2019nin en k\u00fc\u00e7\u00fck SMA hastalar\u0131ndan Asr\u0131n Efe G\u00fclkan\u2019\u0131n ard\u0131ndan bu kez de Mersin\u2019de ya\u015fayan Serap ve Mehmet Tok \u00e7iftinin minik yavrusu SMA Tip 1 hastas\u0131 Ya\u011fmur Deniz i\u00e7in \u201cHaydi dayan\u0131\u015fmaya\u201d dedi. Ba\u015fkan Se\u00e7er, \u0130\u015f \u0130nsan\u0131 Sibel Karata\u015f\u2019\u0131n moderat\u00f6rl\u00fc\u011f\u00fcnde Instagram \u00fczerinden yap\u0131lan canl\u0131 yay\u0131nda, 25 ayl\u0131k Ya\u011fmur Deniz\u2019in sa\u011fl\u0131\u011f\u0131na kavu\u015fmas\u0131 i\u00e7in destek \u00e7a\u011fr\u0131s\u0131 yapt\u0131.<\/p>\n
Canl\u0131 yay\u0131na kat\u0131larak dayan\u0131\u015fmay\u0131 b\u00fcy\u00fcten di\u011fer konuklar ise Adana B\u00fcy\u00fck\u015fehir Belediye Ba\u015fkan\u0131 Zeydan Karalar, CHP Mersin Milletvekili ve Parti Meclisi \u00dcyesi Ali Mahir Ba\u015far\u0131r ile Sanat\u00e7\u0131 Onur Ak\u0131n oldu. Yay\u0131nda, sembolik olarak denizy\u0131ld\u0131zlar\u0131 sat\u0131n al\u0131narak ve \u2018NEFES\u2019 yaz\u0131p 7021\u2019e SMS g\u00f6nderilerek ba\u011f\u0131\u015flar yap\u0131ld\u0131. Vatanda\u015flar tedavi i\u00e7in ald\u0131klar\u0131 her bir denizy\u0131ld\u0131z\u0131 ile 50 lira, SMS g\u00f6ndererek de 20 lira ba\u011f\u0131\u015fta bulundu. Yay\u0131n boyunca konuklar dayan\u0131\u015fma \u00e7a\u011fr\u0131s\u0131 yaparken, Sanat\u00e7\u0131 Onur Ak\u0131n da t\u00fcrk\u00fcler s\u00f6yledi.<\/p>\n
\u201cT\u00fcm duyarl\u0131 vatanda\u015flar\u0131m\u0131zdan Ya\u011fmur Deniz i\u00e7in bu kampanyaya katk\u0131 sunmalar\u0131n\u0131 bekliyoruz\u201d<\/p>\n
Yay\u0131n\u0131n Ya\u011fmur Deniz i\u00e7in g\u00fczel sonu\u00e7lar vermesi dile\u011finde bulunan Ba\u015fkan Se\u00e7er, \u201cT\u00fcrkiye\u2019de bu \u00f6nemli bir sorun ailelerimiz i\u00e7in. Yakla\u015f\u0131k olarak 1600, 1700 civar\u0131nda SMA hastas\u0131 oldu\u011funu biliyorum. Tablo bu. Bu bir genetik rahats\u0131zl\u0131k ve \u00f6zellikle ekonomik durumu yeterli olmayan aileler i\u00e7in tedavisi m\u00fcmk\u00fcn olmayan, hatta orta gelirli aileler i\u00e7in dahi tedavi masraf\u0131n\u0131n kar\u015f\u0131lanmas\u0131 son derece g\u00fc\u00e7 olan bir hastal\u0131k\u201d dedi.<\/p>\n
Sosyal devletten ve \u00f6neminden bahsederek konu\u015fmas\u0131n\u0131 s\u00fcrd\u00fcren Ba\u015fkan Se\u00e7er, \u201cBu konuda \u00f6nemli sorunlar var. Takip etti\u011fim kadar\u0131yla SMA hastas\u0131 \u00e7ocuklar\u0131m\u0131z\u0131n aileleri defaatle Ankara\u2019da merkezi y\u00f6netimin yetkilileri ile g\u00f6r\u00fc\u015fmeye gittiler. Parlamentoya gittiler. Muhalefet partisi liderleriyle g\u00f6r\u00fc\u015ft\u00fcler. Bir araya geldikleri dernekler ve sivil toplum kurulu\u015flar\u0131 arac\u0131l\u0131\u011f\u0131yla yapt\u0131lar. Herhangi bir sonu\u00e7 elde edemediler. \u00c7al\u0131\u015fmalar oldu ama bir yasal stat\u00fc kazanmad\u0131. Bununla ilgili bir sosyal g\u00fcvenlik \u015femsiyesi alt\u0131na al\u0131nmas\u0131 i\u00e7in yasal bir d\u00fczenleme yap\u0131lmad\u0131\u201d diye konu\u015ftu.<\/p>\n
Tedavi bedelinin 2 milyon dolar\u0131n \u00fczerinde bir rakam oldu\u011funu s\u00f6yleyen Se\u00e7er, \u201cAilemizin bunu kar\u015f\u0131lamas\u0131 m\u00fcmk\u00fcn de\u011fil. Ge\u00e7imini zaten zor idame ettiren insanlar\u0131n bu tip milyon dolarl\u0131k tedavi yapt\u0131rmalar\u0131 m\u00fcmk\u00fcn de\u011fil. \u0130\u015fte b\u00f6yle \u00e7al\u0131\u015fmalarla, toplumu bu konuda yard\u0131ma davet etmek, yard\u0131msever insanlar\u0131 yard\u0131ma davet etmek; bu sosyal medya arac\u0131l\u0131\u011f\u0131yla ya da de\u011fi\u015fik etkinlikler arac\u0131l\u0131\u011f\u0131yla bu tedavi bedelini toplama gayreti i\u00e7erisinde oluyorlar. Tabi kolay bir i\u015f de\u011fil ancak Ya\u011fmur Deniz i\u00e7in Valilik iznine tabi bir kampanya, buras\u0131 \u00f6nemli; \u00e7\u00fcnk\u00fc her aile bunu sa\u011flayam\u0131yor. Ancak bu ailemiz, bu imkan\u0131 sa\u011flam\u0131\u015f ve bug\u00fcn burada b\u00f6yle bir \u00e7al\u0131\u015fma yap\u0131l\u0131yor. Sosyal medya arac\u0131l\u0131\u011f\u0131yla t\u00fcm duyarl\u0131 vatanda\u015flar\u0131m\u0131zdan Ya\u011fmur Deniz i\u00e7in bu kampanyaya katk\u0131 sunmalar\u0131n\u0131 bekliyoruz\u201d ifadelerini kulland\u0131.<\/p>\n
\u201cUmut ediyorum Ya\u011fmur Deniz\u2019in de k\u0131sa bir s\u00fcre i\u00e7erisinde tedavisine ba\u015flanabilir\u201d<\/p>\n
Ge\u00e7ti\u011fimiz aylarda yine b\u00f6yle bir kampanyaya katk\u0131 sunmaya \u00e7al\u0131\u015ft\u0131klar\u0131n\u0131 an\u0131msatan Se\u00e7er, \u201cO ailemiz yeterli miktarda tedavi bedelini toplayabilmi\u015fti. Yine Valilik izinli bir kampanyayd\u0131. \u015eu anda da tedavisi devam ediyor. Umut ediyorum Ya\u011fmur Deniz\u2019in de bu \u015fekilde k\u0131sa bir s\u00fcre i\u00e7erisinde tedavisine ba\u015flanabilir\u201d dile\u011finde bulundu.<\/p>\n
SMA hastalar\u0131 i\u00e7in devletin bir \u00e7\u00f6z\u00fcm bulmas\u0131 gerekti\u011fini de ifade eden Ba\u015fkan Se\u00e7er, di\u011fer SMA hastas\u0131 \u00e7ocuklar\u0131n ailelerinden de mesajlar ald\u0131\u011f\u0131n\u0131 belirterek, belediye olarak azami bir \u015fekilde destekler sunacaklar\u0131n\u0131 s\u00f6yledi. Se\u00e7er, \u201cUmut ediyorum kal\u0131c\u0131 bir \u00e7\u00f6z\u00fcm bulunur\u201d dedi.<\/p>\n
Ba\u015fkan Karalar: \u201cBu evlad\u0131m\u0131z\u0131 kurtarmak i\u00e7in yard\u0131m \u00e7a\u011fr\u0131s\u0131 yap\u0131yoruz\u201d<\/p>\n
Adana B\u00fcy\u00fck\u015fehir Belediye Ba\u015fkan\u0131 Zeydan Karalar, \u201cBu, san\u0131yorum SMA\u2019l\u0131 hastalar ile ilgili yapt\u0131\u011f\u0131m\u0131z 5\u2019inci program. Tabii ki vatanda\u015flar\u0131m\u0131z \u00e7ok duyarl\u0131, ciddi manada da yard\u0131ma kat\u0131l\u0131yorlar. Biz buradan da bir \u00e7a\u011fr\u0131 yapal\u0131m. Kar\u0131nca karar\u0131nca herkesin yard\u0131m\u0131 \u00e7ok \u00f6nemli bu a\u015famada. Burada asl\u0131nda devlete de bir \u00e7a\u011fr\u0131 yapmak laz\u0131m. SMA hastas\u0131 1 de\u011fil, 10 de\u011fil, 100 de de\u011fil. Buna devletin bir an \u00f6nce el atmas\u0131 gerekiyor. Belki bu karde\u015fimizi kurtaraca\u011f\u0131z ama di\u011fer karde\u015flerimiz ne olacak? Bu problemi devletin \u00e7\u00f6zmesi gerekiyor. Buradan da t\u00fcm halk\u0131m\u0131za, bu evlad\u0131m\u0131z\u0131 kurtarmak i\u00e7in yard\u0131m \u00e7a\u011fr\u0131s\u0131nda bulunal\u0131m\u201d ifadelerini kulland\u0131.<\/p>\n
\u201cUmar\u0131m \u00e7ocu\u011fumuz sa\u011fl\u0131\u011f\u0131na kavu\u015fur\u201d<\/p>\n
CHP Mersin Milletvekili ve Parti Meclisi \u00dcyesi Ali Mahir Ba\u015far\u0131r, Ba\u015fkan Se\u00e7er\u2019in sosyal devlet ile ilgili s\u00f6yledi\u011fi s\u00f6zlere kat\u0131ld\u0131\u011f\u0131n\u0131 belirterek, \u201cHerhalde 2\u2019nci kez yay\u0131na kat\u0131l\u0131yorum ben. Ba\u015fkan\u0131m da duyarl\u0131l\u0131k g\u00f6sterdi sa\u011f olsun. Umar\u0131m bir an \u00f6nce bu para toplan\u0131r, \u00e7ocu\u011fumuz sa\u011fl\u0131\u011f\u0131na kavu\u015fur. Annemiz, babam\u0131z mutlu bir \u015fekilde onunla ya\u015far ve Ya\u011fmur Deniz ile birlikte de Say\u0131n Ba\u015fkan\u0131m\u0131z\u0131 belediyede hep beraber ziyaret ederiz\u201d diye konu\u015ftu.<\/p>\n
\u201cBu ak\u015fam b\u00fct\u00fcn \u00e7abam\u0131z Ya\u011fmur Deniz i\u00e7in denizy\u0131ld\u0131z\u0131 satmak\u201d<\/p>\n
Elinden geldi\u011fince SMA\u2019l\u0131 bebekler i\u00e7in yap\u0131lan kampanyalarda yer ald\u0131\u011f\u0131n\u0131 s\u00f6yleyen Sanat\u00e7\u0131 Onur Ak\u0131n, pandemi s\u00fcrecinde sanat\u0131n iyile\u015ftirici g\u00fcc\u00fcne inand\u0131\u011f\u0131n\u0131 ve SMA hastas\u0131 bebeklere umut olmak i\u00e7in yay\u0131nlar yapt\u0131\u011f\u0131n\u0131 s\u00f6yledi. Ak\u0131n, \u201cBu ak\u015fam b\u00fct\u00fcn \u00e7abam\u0131z Ya\u011fmur Deniz i\u00e7in denizy\u0131ld\u0131z\u0131 satmak\u201d dedi.<\/p>\n
\u201cAilemiz oldunuz\u201d<\/p>\n
Ya\u015fad\u0131klar\u0131 s\u00fcreci ve duygular\u0131n\u0131 ifade eden baba Mehmet Tok ise \u201cAilemiz oldunuz. Bizi mutlu ettiniz. \u0130n\u015fallah Ya\u011fmur\u2019umuzun kampanyas\u0131 biter, sa\u011fl\u0131\u011f\u0131na kavu\u015fur. Ger\u00e7ekten aile olarak s\u0131k\u0131nt\u0131 ya\u015f\u0131yoruz. 2 y\u0131ld\u0131r bizim evde g\u00fclme yok. \u00c7\u00fcnk\u00fc var\u0131m\u0131z yo\u011fumuz Ya\u011fmur Deniz oldu. \u0130n\u015fallah Ya\u011fmur Deniz sa\u011fl\u0131\u011f\u0131na kavu\u015fursa hepimiz mutlu oluruz\u201d diye konu\u015ftu.<\/p>\n","protected":false},"excerpt":{"rendered":"
Mersin B\u00fcy\u00fck\u015fehir Belediye Ba\u015fkan\u0131 Vahap Se\u00e7er, T\u00fcrkiye\u2019nin en k\u00fc\u00e7\u00fck SMA hastalar\u0131ndan Asr\u0131n Efe G\u00fclkan\u2019\u0131n ard\u0131ndan bu kez de Mersin\u2019de ya\u015fayan Serap ve Mehmet Tok \u00e7iftinin minik yavrusu SMA Tip 1 … Devam\u0131n\u0131 Oku…<\/a><\/p>\n","protected":false},"author":2,"featured_media":13858,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":[],"categories":[3,5],"tags":[],"_links":{"self":[{"href":"https:\/\/akdenizolaygazetesi.com\/index.php?rest_route=\/wp\/v2\/posts\/13857"}],"collection":[{"href":"https:\/\/akdenizolaygazetesi.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/akdenizolaygazetesi.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/akdenizolaygazetesi.com\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/akdenizolaygazetesi.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=13857"}],"version-history":[{"count":1,"href":"https:\/\/akdenizolaygazetesi.com\/index.php?rest_route=\/wp\/v2\/posts\/13857\/revisions"}],"predecessor-version":[{"id":13859,"href":"https:\/\/akdenizolaygazetesi.com\/index.php?rest_route=\/wp\/v2\/posts\/13857\/revisions\/13859"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/akdenizolaygazetesi.com\/index.php?rest_route=\/wp\/v2\/media\/13858"}],"wp:attachment":[{"href":"https:\/\/akdenizolaygazetesi.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=13857"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/akdenizolaygazetesi.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=13857"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/akdenizolaygazetesi.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=13857"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}